Hannah Assata was born October 2004 a full term baby. Due to complications in the delivery process she was diagnosed with Hypoxic-ischemic encephalopathy, Dysphagia: Seizures, Respiratory issues, Spastic quadriplegic cerebral palsy and Hypertonia. Due to the dysphagia Hannah is not able to take anything by mouth, therefore, she has a G-tube in place along with a Nissen fundoplication.
Hannah spent the majority of her first year to two years of age in and out of the hospital but thank God for prayer, much help, love and support she is doing better today. Her medical struggles now are ear infections, tracheitis (bacterial infection in the trachea), and every now and then pneumonia. Despite Hannah’s medical conditions, she is one feisty, loving “I’m the princess” type of girl. With much love and prayer she has come along way even though she still has a long way to go. If you were to come across her you would never know how much of a fighting spirit Hannah has just by looking at her but considering the odds were seriously against her when she was first born and now she is 3 ½ years old should show anyone what prayer and determination can do.
Julianna Elizabeth was born on December 7, 2004. Julie can not eat solid foods, walk, crawl, roll, talk, see or sit alone, but hey she heard that! She was born, a full term baby sent home with mommy and daddy, with no problems. A few days later Julie sounded stuffy, went to the Doctor and ER, nothing. At around 4 months old Julie got the chicken pox's along with a rash on the left side of her face that took forever to go away. Julie was later seen by an eye Dr. who said she had Cortical Blindness which was followed by second opinion at Boston Children's Hospital and yes the diagnosis was indeed cortical blindness/optic atrophy. After dealing with many different hospitals and doctors she was finally sent to Children’s Hospital of Philadelphia where she underwent several test and finally an MRI which later showed lipomas and softening of the white matter and also areas that are oxygen deprived. No one had any idea and Pediatrics never saw anything. All tests kept coming back normal until her MRI in the summer of 2006 when it was the first time the neurologist said he thought Julie had Mitochondrial disease. Julie has since been diagnosed with Mitochondrial disease but despite all her medical challenges she is one sweet loving, huggable little princess that enjoys to be snuggled and kissed and is really fighting her disease and fighting to live to be a testimony to many others.
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